by Nisa Islam Muhammad
Staff Writer
WASHINGTON
(FinalCall.com)�Angie Smith was a vibrant woman who loved her family.
She was a retired beautician who had outlived two of her children.
Slowly and painfully she started to forget faces and withdraw.
"At first, I didn�t pick it up," said her granddaughter,
Baqiya Adam, who was her caretaker. "I just thought she was having
difficulty remembering things, but over time it got worse. She couldn�t
remember her great grandchildren."
Mrs. Smith was later diagnosed with Alzheimer�s disease,
a quiet invasion that appears as just the symptoms of old age but really
is a silent epidemic in the Black community.
Recent studies show that Alzheimer�s disease seems to be
more prevalent among Blacks with estimates ranging from as low as 14
percent to almost 100 percent higher than the disease�s prevalence among
Whites, according to the Alzheimer�s Association.
"Alzheimer�s disease is a �silent epidemic� that has
slowly invaded the African American community before most of us were
even aware of its symptoms and its impact. These studies are sending us
a clear wake-up call," said Orien Reid, chair of the Alzheimer�s
Association board of directors.
"Now, the epidemic has reached crisis proportions.
We must mobilize all of the resources we can find to get it under
control before it overwhelms us," she said.
For Mrs. Smith, diagnosis came when her doctor asked her
some basic questions, which required her to use short and long-term
memory.
"The questions about her past, she breezed right
through," said Mrs. Adam, "but when it came to recent events, she was
lost and she knew it. Her face was pained because she couldn�t remember
something as simple as what she ate yesterday but she could tell you
things 20 and 30 years ago."
The disease initially affects the short-term memory and
without proper education most people attribute it to just getting old.
"We don�t recognize the symptoms which delays the
necessary care and medication to delay the onset of the disease," said
Mrs. Reid. "People should look for changes in personality and the
inability to perform daily functions. It doesn�t have to be Alzheimer�s,
but it could be. You won�t know until you get a professional diagnosis."
What is Alzheimer�s disease?
Currently, four million Americans have Alzheimer�s. The
disease affects the brain, causing loss of memory and personality
changes. It could begin as early as 20 years before the symptoms appear.
Baby boomers will enter the age of highest risk in about 2020, when the
oldest of them approaches age 75.
According to the Alzheimer�s Association:
� The number of Blacks entering age of risk (65 and
older) is growing rapidly.
� Age is a key risk factor for Alzheimer�s disease in
all racial and ethnic groups. Over 10 percent of all persons over 65,
and nearly half of those over 85 have Alzheimer�s disease.
� The number of Blacks age 65 and over will more than
double by 2030, from 2.7 million in 1995 to 6.9 million by 2030.
� The number of Blacks age 85 and over is growing almost
as rapidly, from 277,000 in 1995 to 638,000 in 2030, and will increase
more than fivefold between 1995 and 2050 when it will reach 1.6 million.
Dr. Hugh Hendrie of the Indiana University School of
Medicine saw an increasing number of Blacks getting Alzheimer�s and
decided to study the risk factors Blacks have for the disease.
"I studied similar groups of elderly Yoruba in Nigeria
with elderly African Americans for over 10 years to determine if there
were any differences in the rates these two groups get the disease," he
said.
The results Dr. Hendrie found were amazing.
"The rate of the disease was 2.5 times higher in African
Americans. New cases were also more than twice as many. My results
showed that African Americans were getting the disease quicker and more
frequently than Africans," Dr. Hendrie told The Final Call. "I
was puzzled and wanted to know why," he said.
His research found that the Yoruba had genetic
interactions that did not occur in Black Americans.
"We found that this particular gene, APOE genotype, acts
differently in particular environments. When this gene is exposed to
vascular disease such as hypertension, diabetes and cholesterol, it can
lead to Alzheimer�s. These diseases (hypertension, diabetes, etc.)
happen less often in the Yoruba but are common in elderly African
Americans," said Dr. Hendrie.
When Alzheimer�s strikes
In addition to these genetic factors, there are also
environmental factors like diet. The study found that the Yoruba diet
was primarily vegetarian with very little meat and lower in fat and
calories. On the other hand, Black Americans super size it at fast-food
restaurants leading to diets heavy laden with fat and calories.
"These are all things that we can control. We know how
to prevent hypertension, diabetes and high cholesterol," explained Dr.
Hendrie.
Rose Miller had taken her dad to Jamaica for a
well-deserved vacation when she realized her dad had a problem. For the
longest she had ignored the questions and concerns of her relatives
about her dad�s forgetfulness as well as his changing personality.
"He was 80-years-old and had sent seven children to
college. I was his caregiver and he didn�t seem ill to me," explained
Ms. Miller.
"While we were in Jamaica, I went to his room to get him
for dinner and he wasn�t there. I looked high and low for him but he was
nowhere to be found. He was gone for 15 hours. I was panic-stricken. I
couldn�t go back home without him."
The next day, the Jamaican police found Mr. Miller
coming out of another hotel room.
"I was scared to death. I knew something was wrong after
that. He was so embarrassed when he realized that he had been gone for
so long," Ms. Miller said.
Wandering is common among those with Alzheimer�s. There
is a national registry database for caregivers and their relatives. Each
wears a bracelet that identifies them as either someone with Alzheimer�s
or a caregiver of someone with Alzheimer�s.
Police can call the number on the bracelet and have the
person returned safely. There is a 98 percent return rate for those in
the program and education is key to treatment.
"We�re a community that doesn�t reach out much. We
generally care for our loved ones at home. We don�t recognize the
symptoms and we don�t have access to good medical care. There are 10
warning signs at alz.org or people can call us at 800-272-3900," Ms.
Miller said.
The Alzheimer�s Association explains that screening and
assessment tools and clinical trials are not designed to address the
unique presentation of Alzheimer�s disease in Blacks, so caregivers have
to be vigilant about getting the proper care.
Ethnic and cultural bias in current screening and
assessment tools is well documented; as a result, Blacks who are
evaluated have a much higher rate of false-positive results. At the same
time, there is substantial evidence of under-reporting of dementia among
Blacks.
Since Blacks tend to either not know what the symptoms
are or miss the symptoms, they tend to be diagnosed at a later stage of
Alzheimer�s disease�limiting the effectiveness of treatments that depend
upon early intervention.
"Alzheimer�s is a living funeral. You lose a little bit
of the person daily. It attacks their brain and takes away their
personality. Day after day, the person you loved slowly slips away. The
more we know, the more we can help," said Mrs. Reid.
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